I just learned of the organization Sidelines, which works specifically with high risk pregnancies and NICU information, support groups and volunteers who can assist with so many different things.
Although we have had such great care here, we are looking for other opinions and are hopeful to find doctors who have dealt with a case like ours.
If you are interested, check our their website as I have found all sorts of good information on it:
http://www.sidelines.org/
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